Respected Pharma Companies,
Below is the list of medications required for the treatment of Cystic Fibrosis patients in India. As you can see we have also commented on the availability of such medicines in India.
We request all companies, to consider launching these medicines through voluntary licenses from Patent holders or generic production as the case maybe.
We also request the innovator companies, to please come forward themselves if possible.
Thanks to initiatives of our government there are all sorts of initiatives to support you. See Below:
Department of Science and Technology - Call for Proposals
National Consortium for Research and Development on therapeutics for Rare Diseases
ICMR - Rare Disease Patient Registry
Performance Linked Incentive Scheme of Government - For Production of Orphan Medicines
We are at this point asking pharma companies to address as many treatment gaps as possible in India.
So please reach out to us, we are happy to hear from you, and are willing to share what we can and support where we can
On Behalf of all CF Patients in India,
CF Trust