We are running a voluntary registry for all interested cystic fibrosis patients. By entering data into the register you are automatically consenting for the use of your data for all the projects of the Trust. The aims and objects of the trust include advocacy to government, pharma companies and medical device companies. Our objective is to address treatment gaps and for that reason we may use your data for all types of analysis. 

We are running a voluntary registry for all interested doctors who wish to be part of the cystic fibrosis ecosystem. At present, we are requesting doctors to register who have the power and qualification to treat patients.